Meet Brian, a happy, lively, brilliant and amazing three and a half year old.  Brian brings joy to everyone he meets with his quick wit, his mushy hugs and his beautiful smile.  He loves to play, loves to laugh, loves to be silly and especially loves to play with Thomas the train tank engines!

Recently, Brian was diagnosed with a devastating rare genetic disorder called ataxia-telangiectasia.  Currently, there is no cure.  A-T is a hereditary condition that begins when a child starts walking.  It causes a gradual loss of nerve cells in the cerebellum of the brain.  As it progresses, symptoms will include severe loss of muscle control, dilated small blood vessels, repeated infections of the sinus and lungs, weakened immune systems and frequently leads to cancers such as lymphoma and leukemia.  What does this mean?  "Imagine a disease that combines the worst symptoms of muscular dystrophy, cerebral palsy, cystic fibrosis, immune deficiencies, and cancer.  Children with A-T are often confined to a wheel chair by the age of 10 and often do not survive their teens." (A-T Children's Project)

A-T may rob Brian of the healthy and happy future that he deserves.  For now, his family keeps him blissfully unaware.  They play trains, drive Hot Wheels cars, laugh, snuggle and enjoy every second that they have together.  The future is unknown, so they must make the most out of their time together and live in the moment. 

Brian's family is racing the clock to save Brian and of course the other children with this life threatening, devastating disease.  Their only hope lies in finding a cure.  Together lets raise awareness about A-T and raise the funds desperately needed to save Brian and the other children.

Donate to the A-T Children's Project to help fund the research here:


                                                                                                                                                       Thank you to Didi Art Angels for making this beautiful Thomas the Train painting for him and for sharing this forum to promote awareness.